Abstract
Dementia and Alzheimer's disease are affecting more and more people worldwide. According to the World Health Organization, 60-70% of the approximately 55 million people diagnosed with dementia worldwide suffer from Alzheimer's, adding 9.9 million new cases diagnosed each year. While the annual global cost of dementia exceeds $1 billion, its cost is estimated to double by 2030.
It is stated that new digital technologies and e-health solutions for dementia patients have a strong potential to help individuals face the challenges related to dementia and neurodegenerative disorders. Some examples of e-health solutions for people with dementia are reported as wearable, portable, or implantable devices, depending on appropriate platforms and services, and to support interaction between patients and doctors. New digital technologies are powerful tools to help individuals overcome the challenges of dementia and neurodegenerative disorders. Communication difficulties are common in people with dementia. Meaningful communication initiatives using technology and the Internet can help alleviate symptoms and perhaps lessen their severity. To develop and implement this potential, it is essential to produce solutions that combine health sciences, social sciences, and engineering solutions. With the idea of REMEM, developed with this in mind, with the support of the Turkish National Agency and the European Union, mobile applications aimed at improving memory that can be used not only by dementia and Alzheimer's patients but also by others were examined and a new mobile application called REMEM was developed.
Supporting Institution
Türkiye Ulusal Ajansı
Project Number
2019-1-TR01-KA204-074782
Thanks
REMEM project is supported by the Turkish National Agency with project number 2019-1-TR01-KA204-074782within the scope of Strategic Partnerships in the Field of Adult Education. The project is “Funded by the Erasmus+ Programme of the European Union. However, European Commission and Turkish National Agency cannot be held responsible for any use which may be made of the information contained therein”.
References
- Gauthier S, Rosa-Neto P, Morais JA, & Webster C. (2021). World Alzheimer Report 2021: Journey through the diagnosis of dementia. London, England: Alzheimer’s Disease International. Available at: https://www.alzint.org/u/World-Alzheimer-Report-2021.pdf
- Yamagata, C., Coppola, J. F., Kowtko, M., & Joyce, S. (2013). Mobile app development and usability research to help dementia and Alzheimer patients. In 2013 IEEE Long Island Systems, Applications and Technology Conference (LISAT) (pp. 1-6). IEEE.
- European Commission. (2014). Implementation report on the Commission communication on a European initiative on Alzheimer's disease and other dementias.
- Ekici, S. K., & Gümüş, Ö. (2016). Technology usage in older ages. Ege Journal of Medicine, 55, 26-30.
- Şahin, B., & Yıldırım, A. (2019). Yaşlı Bireylerde İnternet Kullanımı İle Yaşam Doyumu, Algılanan Sosyal Destek Ve Umutsuzluk Düzeyleri Arasındaki İlişkinin İncelenmesi. Yaşlı Sorunları Araştırma Dergisi, 12(2), 97-106.
- Aile ve Sosyal Politikalar Bakanlığı (2017). Demans Bakım Modeli Raporu, Aile ve Sosyal Politikalar Bakanlığı Sosyal İçerme Politikaları Alanında Kurumsal Kapasitenin Artırılması Projesi. Aile ve Sosyal Politikalar Bakanlığı, ASPB, Ankara.
- Gupta, G., Gupta, A., Jaiswal, V., & Ansari, M. D. (2018, December). A review and analysis of mobile health applications for Alzheimer patients and caregivers. In 2018 Fifth International Conference on Parallel, Distributed and Grid Computing (PDGC) (pp. 171-175). IEEE.
- Joddrell, P., & Astell, A. J. (2016). Studies involving people with dementia and touchscreen technology: a literature review. JMIR rehabilitation and assistive technologies, 3(2), e5788.
- Cipriani, G., Lucetti, C., Nuti, A., & Danti, S. (2014). Wandering and dementia. Psychogeriatrics, 14(2), 135-142.
- Miskelly, F. (2005). Electronic tracking of patients with dementia and wandering using mobile phone technology. Age and ageing, 34(5), 497-499.
- Wan, L., Müller, C., Randall, D., & Wulf, V. (2016). Design of A GPS monitoring system for dementia care and its challenges in academia-industry project. ACM Transactions on Computer-Human Interaction (TOCHI), 23(5), 1-36.
- Koo, B. M., & Vizer, L. M. (2019). Examining mobile technologies to support older adults with dementia through the lens of personhood and human needs: Scoping review. JMIR mHealth and uHealth, 7(11), e15122.
- Gupta, G., Gupta, A., Barura, P., & Jaiswal, V. (2019). Mobile health applications and android toolkit for alzheimer patients, caregivers and doctors. In Biological Forum–An International Journal (Vol. 11, No. 1, pp. 199-205).
- available at: https://life360.tr.uptodown.com/android/download
- available at: https://play.google.com/store/apps/details?id=eu.smartpatient.mytherapy&hl=en_US&gl=US
- https://apps.apple.com/us/app/elevate-brain-training/id875063456#:~:text=Elevate's%20games%20are%20designed%20in,training%20program%20for%20each%20user
- available at: https://www.lumosity.com/en/
- https://play.google.com/store/apps/details?id=com.fungamesforfree.colorfy&hl=en_US&gl=US
- https://apps.apple.com/us/app/relax-sounds-relaxing-nature-ambient-melodies-help/id782361353
- https://play.google.com/store/apps/details?id=com.getsomeheadspace.android&hl=tr&gl=US
- ttps://apps.apple.com/us/app/soothing-sleep-sounds/id880195209 https://apps.apple.com/us/app/memorybox-app/id1033303683
- available at: https://www.mindmate-app.com/ https://www.alzheimersresearchuk.org/campaigns/awtd/#:~:text=A%20Walk%20Through%20Dementia%20is,dementia%20has%20on%20people's%20lives
- available at: https://www.myalzteam.com/
Abstract
Demans ve Alzheimer hastalığı dünya çapında giderek daha fazla insanı etkiliyor. Dünya Sağlık Örgütü'ne göre, dünya çapında demans teşhisi konan yaklaşık 55 milyon kişinin %60-70'i Alzheimer'dan muzdariptir ve buna her yıl teşhis edilen 9,9 milyon yeni vaka eklenmektedir. Demansın yıllık küresel maliyeti 1 milyar doları aşsa da, maliyetinin 2030 yılına kadar iki katına çıkacağı tahmin ediliyor.
Demans hastalarına yönelik yeni dijital teknolojilerin ve e-sağlık çözümlerinin, bireylerin demans ve nörodejeneratif bozukluklarla ilgili zorluklarla yüzleşmelerine yardımcı olacak güçlü bir potansiyele sahip olduğu belirtilmektedir. Demanslı kişiler için e-sağlık çözümlerinin bazı örnekleri, hastalar ve doktorlar arasındaki etkileşimi desteklemek için, uygun platformlara ve hizmetlere bağlı olarak giyilebilir, taşınabilir veya implante edilebilir cihazlar olarak bildirilmektedir. Yeni dijital teknolojiler, bireylerin demans ve nörodejeneratif zorluklarının üstesinden gelmelerine yardımcı olacak güçlü araçlardır. Demanslı kişilerde iletişim güçlükleri yaygındır. Teknolojiyi ve interneti kullanan anlamlı iletişim girişimleri, semptomları hafifletmeye ve belki de ciddiyetlerini azaltmaya yardımcı olabilir. Bu potansiyeli geliştirmek ve uygulamak için sağlık bilimleri, sosyal bilimler ve mühendislik çözümlerini birleştiren çözümler üretmek esastır. Bu düşünceyle geliştirilen REMEM fikri ile Türkiye Ulusal Ajansı ve Avrupa Birliği desteği ile sadece demans ve Alzheimer hastalarının değil, başkalarının da kullanabileceği hafızayı geliştirmeye yönelik mobil uygulamalar incelenmiş ve REMEM adlı yeni bir mobil uygulama geliştirilmiştir.
Project Number
2019-1-TR01-KA204-074782
References
- Gauthier S, Rosa-Neto P, Morais JA, & Webster C. (2021). World Alzheimer Report 2021: Journey through the diagnosis of dementia. London, England: Alzheimer’s Disease International. Available at: https://www.alzint.org/u/World-Alzheimer-Report-2021.pdf
- Yamagata, C., Coppola, J. F., Kowtko, M., & Joyce, S. (2013). Mobile app development and usability research to help dementia and Alzheimer patients. In 2013 IEEE Long Island Systems, Applications and Technology Conference (LISAT) (pp. 1-6). IEEE.
- European Commission. (2014). Implementation report on the Commission communication on a European initiative on Alzheimer's disease and other dementias.
- Ekici, S. K., & Gümüş, Ö. (2016). Technology usage in older ages. Ege Journal of Medicine, 55, 26-30.
- Şahin, B., & Yıldırım, A. (2019). Yaşlı Bireylerde İnternet Kullanımı İle Yaşam Doyumu, Algılanan Sosyal Destek Ve Umutsuzluk Düzeyleri Arasındaki İlişkinin İncelenmesi. Yaşlı Sorunları Araştırma Dergisi, 12(2), 97-106.
- Aile ve Sosyal Politikalar Bakanlığı (2017). Demans Bakım Modeli Raporu, Aile ve Sosyal Politikalar Bakanlığı Sosyal İçerme Politikaları Alanında Kurumsal Kapasitenin Artırılması Projesi. Aile ve Sosyal Politikalar Bakanlığı, ASPB, Ankara.
- Gupta, G., Gupta, A., Jaiswal, V., & Ansari, M. D. (2018, December). A review and analysis of mobile health applications for Alzheimer patients and caregivers. In 2018 Fifth International Conference on Parallel, Distributed and Grid Computing (PDGC) (pp. 171-175). IEEE.
- Joddrell, P., & Astell, A. J. (2016). Studies involving people with dementia and touchscreen technology: a literature review. JMIR rehabilitation and assistive technologies, 3(2), e5788.
- Cipriani, G., Lucetti, C., Nuti, A., & Danti, S. (2014). Wandering and dementia. Psychogeriatrics, 14(2), 135-142.
- Miskelly, F. (2005). Electronic tracking of patients with dementia and wandering using mobile phone technology. Age and ageing, 34(5), 497-499.
- Wan, L., Müller, C., Randall, D., & Wulf, V. (2016). Design of A GPS monitoring system for dementia care and its challenges in academia-industry project. ACM Transactions on Computer-Human Interaction (TOCHI), 23(5), 1-36.
- Koo, B. M., & Vizer, L. M. (2019). Examining mobile technologies to support older adults with dementia through the lens of personhood and human needs: Scoping review. JMIR mHealth and uHealth, 7(11), e15122.
- Gupta, G., Gupta, A., Barura, P., & Jaiswal, V. (2019). Mobile health applications and android toolkit for alzheimer patients, caregivers and doctors. In Biological Forum–An International Journal (Vol. 11, No. 1, pp. 199-205).
- available at: https://life360.tr.uptodown.com/android/download
- available at: https://play.google.com/store/apps/details?id=eu.smartpatient.mytherapy&hl=en_US&gl=US
- https://apps.apple.com/us/app/elevate-brain-training/id875063456#:~:text=Elevate's%20games%20are%20designed%20in,training%20program%20for%20each%20user
- available at: https://www.lumosity.com/en/
- https://play.google.com/store/apps/details?id=com.fungamesforfree.colorfy&hl=en_US&gl=US
- https://apps.apple.com/us/app/relax-sounds-relaxing-nature-ambient-melodies-help/id782361353
- https://play.google.com/store/apps/details?id=com.getsomeheadspace.android&hl=tr&gl=US
- ttps://apps.apple.com/us/app/soothing-sleep-sounds/id880195209 https://apps.apple.com/us/app/memorybox-app/id1033303683
- available at: https://www.mindmate-app.com/ https://www.alzheimersresearchuk.org/campaigns/awtd/#:~:text=A%20Walk%20Through%20Dementia%20is,dementia%20has%20on%20people's%20lives
- available at: https://www.myalzteam.com/
Details
| Primary Language | English |
|---|---|
| Subjects | Engineering |
| Journal Section | Articles |
| Authors | |
| Project Number | 2019-1-TR01-KA204-074782 |
| Early Pub Date | June 30, 2022 |
| Publication Date | July 15, 2022 |
| Published in Issue | Year 2022 Issue: 37 |
